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Urgent ask: Does anyone know a neuroscience clinician in New Hampshire willing to help treat an infant with a rare, devastating genetic brain disorder using an experimental antisense oligonucleotide (ASO) therapy under NH’s new Right to Try law (effective Jan 1, 2026)?
The mutation acts in a dominant-negative way, severely impairing neurotransmission. Without intervention, she faces profound neurodevelopmental decline.
Warm intros deeply appreciated - please DM!
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